Hello from Ocean City, NJ!
We got wireless internet for the house this year, so I'll be able to keep up with my blog while I'm down here. The temperature has been a little bit chilly for the past few days, but today is perfect beach weather, so I'm headed out there after I finish this entry.
Physically I'm feeling better, although not 100%. It seems like every medicine I take to correct one thing causes another problem which I need another medicine for. That's frustrating. I hope that aspect of the treatment gets easier. I'm gradually learning how to lessen my symptoms and understanding how my body reacts to different dosage levels, but it is a tedious process of trial and error.
Tomorrow I return to Wilmington for my second round of chemo. This time I'll be getting all 5 drugs in one day, so it will be a long one. Last time the Rituxan alone took about 6 hours to administer, and I was knocked out for most of that time because I got so sick from it. I am pretty nervous about that happening again tomorrow. I doubt that they'll slow the drip since I have to finish the Rituxan and then the 3+ hours of CHOP. But we'll see. I'll let you know how it goes. I am looking forward to getting it over with.
In happier news, our vacation has been wonderful so far. Dad and I arrived early on Saturday and unpacked the car. We ran some errands and got cheese steaks at Voltaco's. It's great to be eating solid, delicious food again after 5 days of hospital meals and at least 3 days of straight liquids once I got home. Mom and Keen arrived later that night with Winky, our new cat. This is his first year at the beach, and so far he seems to be enjoying it.
I also debuted my wig in public. I was nervous that people would know it was a wig immediately, but so far I haven't gotten any weird looks. Sometimes I'm tempted to whip it off just to see if anyone would be really surprised that it isn't my real hair. haha As for my real hair, it's really falling out now. I wake up with my pillow covered. Handfuls come out in the shower. It's very strange. I think I will have Lucy shave whatever is left off once we get back from vacation.
On Sunday we went to mass at Our Lady of Good Counsel, which is always fun. The guy that plays the electric organ seems to think he's the next Yani. We always get a kick out of his new age renditions of songs like "How Great Thou Art." He loves to add in a lot of synthesized timpani drums and really over-dramatizes the music. I have a hard time keeping a straight face.
After mass I passed out for about 4 hours. It's bizarre how exhausted the chemo drugs make me. I couldn't believe how late it was when I woke up. Mom made corn on the cob and hot dogs for dinner and then Dad, Keen and I went to the boardwalk. I bought a cute red dress and we got ice cream and fudge to bring home.
We ran into Mr. and Mrs. Burns, who own the house across the street from us here. They have been close with our family since my grandparents bought this house, and Mr. Burns is on the board of the Leukemia & Lymphoma Society. Mr. Burns was good friends with my grandfather who passed away from Non-Hodgkin's Lymphoma in 1999. My grandfather was a great man and Mr. Burns shared some funny memories of their years at the beach with me. It was so nice to talk with them.
Anyway, it's time for me to head over to the beach. Bye for now :)
Love,
Lauren
Monday, June 11, 2007
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7 comments:
Hey, Lauren!
Glad to hear you guys are having such a good time in OC. Lots of people were asking about you at St. Joe's yesterday, and Deacon Bob Cousar said he stopped by the hospital to see you on Wed., but you had already checked out.
Thanks for helping to get the internet up & running at the beach. That's going to be great to be able to stay connected in OC. Good luck tomorrow - I'll be thinking of you & hoping things go better than the 1st time. I love you, Lauren!
Love,
Aunt Pat
PS Tell everyone I said "Hi" & I hope to see you all on Sunday :)
Lauren,
I'm glad to hear you're having a great time on your vacation and that you're feeling somewhat better. Your wonderful, positive, "Lauren-esque" attitude is certainly a big part of that! Gregory graduated Kindergarten 2 weeks ago and he leaves tomorrow to go to Florida to stay with my sister for a week. He says he hopes you get better soon and is glad your cold is gone.
All my best to your, Girl :)
Becky
Hey there, Lauren!
My baby is kicking like crazy as I am reading your posts...I think it's his/her way of saying "Keep fighting, Lauren, and we are so proud of you!!"
My heart and prayers continue to be with you each day. I am so glad to hear that you are already winning this battle. Also, I bet you look "hot" in your wig! You go, girl!!!
Love you,
Kelli
That is the great whale noise church music ever. He should have done the soundtrack to Free Willy.
Love you mucho, eat some Mack and Manco for me.
DAN
Hi Lauren-
You hang in there kiddo. Yesterday, I drove into Anchorage to have lunch with a friend and run some errands. It was a gorgeous,sunny day. As I was strolling around town, I stopped at the outdoor grotto near the Holy Family Cathedral and said a special prayer to the Blessed Virgin Mary to help you cope and keep you safe.
Our thoughts and prayers extend to your parents and sister.
Much love,
Aunt Joanne
PS Happy to hear your wig works. Just think, no more "bad hair days" for a while. Ha. You are and always will be beautiful because you're Lauren.
Hi Lauren! Mrs. Bunnell here. I should probably start by saying some really supportive and caring things since I just read your journal for the first time...but I just have to tell you that I spewed my drink in laughter reading your remarks about Ocean City and the Yani "poser". How many summers have I listened to that character morph hymns into new age re-mixes??? I thought I was the only one struggling to keep a straight face through those summer Masses. You made me laugh out loud!
I'm thankful to have read through the journal and caught up with your journey...I do hope that maybe if you slow down long enough, you'll let me drop by for a visit.
In the meantime, I hope you know how much a part of all of our thoughts and prayers you and your family are these days.
with much love,
Dyane
Hi Lauren, I am a patient of Dr.A's and spoke to your mom about a month ago. I do not know if she mentioned me, however, my name is Jen and I am 24 years old. I was diagnosed with invasive breast cancer on June 12th. I have only had one round of Chemo, which was on June 2nd.I really enjoyed reading your journal and can certainly relate to some of your experiences. I, too, have a long road ahead of me; however, I, like you also have a supportive and loving boyfriend, family, and friends.
I know you write to cancer patients on Cancer Planet, however, if you would like another friend to chat with I am here...My e mail address is wickjl@comcast.net.
Hope you are doing well, look forward to hearing from you. Jen
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